Unmet informational and supportive care needs of patients with muscle invasive bladder cancer: a systematic review of the evidence.

Paterson, C.; Jensen, B.T.; Jensen, J.B.; Nabi, G.

Abstract

Background: Little is known about the unmet supportive care needs of patients affected by muscle invasive bladder cancer (MIBC). We set out to determine the different domains of unmet supportive care needs for patients affected by MIBC. Literature Search: A systematic review was conducted according to the PRISMA Statement Guidelines. A sensitive search was performed in electronic databases (DARE, Cochrane MEDLINE, BNI, PsychINFO, EMBASE and CIHAHL) from the earliest date available to January 2017. Data Evaluation: 1405 references were retrieved, 8 articles met the eligibility criteria and were appraised and ranked by strength of the levels of evidence. Synthesis: Individual unmet needs were classified into the following domains: patient-clinician communication, daily living needs, health system/information needs, practical needs, family-related needs, social needs, psychological needs, physical needs and intimacy needs. Patients reported high unmet needs at diagnosis and into survivorship. Conclusions: This review contributes to a greater understanding of the unmet supportive care needs of patients affected by MIBC. Findings reflect a paucity of research, but existing studies indicated needs commonly related to intimacy, informational, physical and psychological needs. Despite the emerging evidence-base, the current within study limitations precludes our understanding about how the needs of patients evolve over time.

Citation

PATERSON, C., JENSEN, B.T., JENSEN, J.B. and NABI, G. 2018. Unmet informational and supportive care needs of patients with muscle invasive bladder cancer: a systematic review of the evidence. European journal of oncology nursing [online], 35, pages 92-101. Available from: https://doi.org/10.1016/j.ejon.2018.05.006

• Journal Article Type: Review
• Acceptance Date: May 14, 2018
• Online Publication Date: Jun 30, 2018
• Publication Date: Aug 31, 2018
• Deposit Date: May 15, 2018
• Publicly Available Date: Jul 1, 2019
• Journal: European journal of oncology nursing
• Print ISSN: 1462-3889
• Electronic ISSN: 1532-2122
• Publisher: Elsevier
• Peer Reviewed: Peer Reviewed
• Volume: 35
• Pages: 92-101
• DOI: https://doi.org/10.1016/j.ejon.2018.05.006
• Keywords: Muscle invasive bladder cancer; Supportive care; Patients; Bladder cancer
• Public URL: http://hdl.handle.net/10059/2919