What are the unmet supportive care needs of men and their partner/caregivers living with and beyond penile cancer? [Protocol]

Paterson, Catherine; Primeau, Charlotte; Bowkerm, Mallory; Jensen, Bente; MacLennan, Steven; Yuan, Cathy; N'Dow, James

Abstract

Globally, cancer of the penis is an uncommon malignancy with reported incidence in Western countries of 1 per 100,000 in Europe. More recently, epidemiological data in United Kingdom (UK) has identified a 21% increase in cases of penile cancer incidence over recent years. An existing systematic review, identified that 50% of men affected by penile cancer experienced psychological problems, 40% reported a negative impact on quality of life, and 70% of patients experienced difficulties with sexual function. This review does not identify the lived experienced of penile cancer, the impact that penile cancer can have on partner/caregivers, or importantly, the areas of unmet supportive care needs in care delivery. Gaining more knowledge of the experiences of men and their loved ones affected by penile cancer will provide additional insights for healthcare providers to create a holistic model of care and clinical practice guidelines. Therefore, this systematic review will address the following research questions: 1. What are the different domains of unmet supportive care needs of men and their partner/caregivers affected by penile cancer? 2. What are the most frequently reported individual domains of unmet need in the current available literature? This review will be conducted using the systematic review methodology provided by the European Association of Urology for clinical guidelines practice.

Citation

PATERSON, C., PRIMEAU, C., BOWKERM, M., JENSEN, B., MACLENNAN, S. and N'DOW, J. 2018. What are the unmet supportive care needs of men and their partner/caregivers living with and beyond penile cancer? A systematic review. [Protocol]. PROSPERO [online], item number CRD42018102376. Available from: http://www.crd.york.ac.uk/PROSPERO/display_record.php?ID=CRD42018102376

• Other Type: Protocol
• Online Publication Date: Jul 3, 2018
• Deposit Date: Nov 12, 2018
• Publicly Available Date: Nov 12, 2018
• Publisher: University of York. Centre for Reviews and Dissemination
• Keywords: Supportive care need; Men; Partners; Penile cancer
• Public URL: http://hdl.handle.net/10059/3215
• Publisher URL: http://www.crd.york.ac.uk/PROSPERO/display_record.php?ID=CRD42018102376