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Experiences of unmet need and access to supportive care for men receiving androgen deprivation therapy for prostate cancer: a bi-national study.

Paterson, Catherine; Primeau, Charlotte; Howard, Nicholas; Xiberras, Peter; Pillay, Brindha; Crowe, Helen

Authors

Catherine Paterson

Charlotte Primeau

Nicholas Howard

Peter Xiberras

Brindha Pillay

Helen Crowe



Abstract

The number of men affected by incurable prostate cancer is expected to increase worldwide. Research is needed to enable men to share their experiences of unmet supportive care needs in current care delivery. We aimed to identify the most frequently reported domains of unmet supportive care needs, levels of anxiety, depression, distress, health-related quality of life, and to identify any perceived barriers to receiving supportive care. Men diagnosed with prostate cancer who had received a minimum of 6 months of ADT were recruited into a cross-sectional study. Participants completed standardised questionnaires; clinical and demographic data was also collected. Two hundred seventy-two patients were invited, and 102 participated. No statistically significant differences were found between participant scores from Australia and UK in relation to anxiety and depression, exercise, health-related quality of life, or distress scores. Perceived barriers include service delivery related to information provision and difficulties in the navigation of complex care systems. Men affected by prostate cancer receiving ADT reported unmet supportive care needs, specifically related to sexual, informational, and psychological aspects of care. Mapping future trajectories of needs and identifying men at high risk can significantly improve timely and tailored interventions.

Citation

PATERSON, C., PRIMEAU, C., HOWARD, N., XIBERRAS, P., PILLAY, B. and CROWE, H. 2020. Experiences of unmet need and access to supportive care for men receiving androgen deprivation therapy for prostate cancer: a bi-national study. Seminars in oncology nursing [online], 36(4), article ID 151049. Available from: https://doi.org/10.1016/j.soncn.2020.151049

Journal Article Type Article
Acceptance Date Jul 21, 2020
Online Publication Date Jul 21, 2020
Publication Date Aug 31, 2020
Deposit Date Jul 28, 2020
Publicly Available Date Jul 22, 2021
Journal Seminars in Oncology Nursing
Print ISSN 0749-2081
Electronic ISSN 1878-3449
Publisher Elsevier
Peer Reviewed Peer Reviewed
Volume 36
Issue 4
Article Number 151049
DOI https://doi.org/10.1016/j.soncn.2020.151049
Keywords Access to services; Androgen deprivation therapy; Locally advanced; Metastatic; Patient care; Prostate cancer; Supportive care; Unmet needs
Public URL https://rgu-repository.worktribe.com/output/951742

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