Skip to main content

Research Repository

Advanced Search

The liminal self in people with multiple sclerosis: an interpretative phenomenological exploration of being diagnosed.

Strickland, Karen; Worth, Allison; Kennedy, Catriona

Authors

Karen Strickland

Allison Worth



Abstract

Aims and objectives: To explore the lived experience of the meaning of being diagnosed with multiple sclerosis on the individual's sense of self. Background: The time leading up to and immediately following the diagnosis of multiple sclerosis has been identified as a time period shrouded by uncertainty and one where individuals have a heightened desire to seek accurate information and support. The diagnosis brings changes to the way one views the self which has consequences for biographical construction. Design: A hermeneutic phenomenological study. Methods: In-depth qualitative interviews were conducted with 10 people recently diagnosed with multiple sclerosis. The data were analysed using interpretative phenomenological analysis. Findings: This study presents the three master themes: the ‘road to diagnosis’,‘the liminal self’ and ‘learning to live with multiple sclerosis’. The diagnosis of multiple sclerosis may be conceptualised as a ‘threshold moment’ where the individual's sense of self is disrupted from the former taken-for-granted way of being and propose a framework which articulates the transition. Conclusion: The findings highlight the need for healthcare professionals to develop interventions to better support people affected by a new diagnosis of multiple sclerosis. The conceptual framework which has been developed from the data and presented in this study provides a new way of understanding the impact of the diagnosis on the individual's sense of self when affected by a new diagnosis of multiple sclerosis. This framework can guide healthcare professionals in the provision of supportive care around the time of diagnosis. Relevance for Clinical Practice: The findings provide practitioners with a new way of understanding the impact of the diagnosis on the individual’s sense of self and a framework which can guide them in the provision of supportive care around the time of diagnosis.

Citation

STRICKLAND, K., WORTH, A. and KENNEDY, C. 2017. The liminal self in people with multiple sclerosis: an interpretative phenomenological exploration of being diagnosed. Journal of clinical nursing [online], 26(11/12), pages 1714-1724. Available from: https://doi.org/10.1111/jocn.13593

Journal Article Type Article
Acceptance Date Sep 22, 2016
Online Publication Date Mar 21, 2017
Publication Date Jun 30, 2017
Deposit Date Jan 13, 2017
Publicly Available Date Mar 22, 2018
Journal Journal of clinical nursing
Print ISSN 0962-1067
Electronic ISSN 1365-2702
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 26
Issue 11/12
Pages 1714-1724
DOI https://doi.org/10.1111/jocn.13593
Keywords Multiple Sclerosis; Diagnosis; Biography; Liminality; Sense of self; Nursing; Psychosocial nursing; Qualitative research; Phenomenology
Public URL http://hdl.handle.net/10059/2084

Files





You might also like



Downloadable Citations