Skip to main content

Research Repository

See what's under the surface

The experiences of support persons of people newly diagnosed with multiple sclerosis: an interpretative phenomenological study.

Strickland, Karen; Worth, Allison; Kennedy, Catriona

Authors

Karen Strickland

Allison Worth

Catriona Kennedy



Abstract

Aim:This study explores the experience of the diagnosis of Multiple Sclerosis for the support person and identifies the impact on their lives. Background: At the time of diagnosis, the support person may not be readily identified in a traditional caring role; however, the diagnosis itself brings with it the possibility of changes to the roles in the relationship and possible consequences for biographical construction. Design: A hermeneutic phenomenological study. Methods: A convenience sample of nine support persons was interviewed between December 2008 - March 2010. The data were analysed using interpretative phenomenological analysis. Findings:The participants in this study were often not readily identifiable as 'carers'; however, the diagnosis of Multiple Sclerosis implied a shift towards a caring role at some point in the future. The uncertainty surrounding the nature and progression of the condition left this identity hanging, incomplete and as such contributed to a liminal way of being. Conclusions: This paper reveals that biographical disruption is not limited to the person diagnosed with Multiple Sclerosis but that the support person also undergoes a transition to their sense of self to that of 'anticipatory carer'. The findings provide insight into the biographical and emotional impact of Multiple Sclerosis on the support persons early in the development of the condition.

Journal Article Type Article
Publication Date Dec 31, 2015
Journal Journal of advanced nursing
Print ISSN 0309-2402
Electronic ISSN 1365-2648
Publisher Wiley Open Access
Peer Reviewed Peer Reviewed
Volume 71
Issue 12
Pages 2811-2821
Institution Citation STRICKLAND, K., WORTH, A. and KENNEDY, C. 2015. The experiences of support persons of people newly diagnosed with multiple sclerosis: an interpretative phenomenological study. Journal of advanced nursing [online], 71(12), pages 2811-2821. Available from: https://doi.org/10.1111/jan.12758
DOI https://doi.org/10.1111/jan.12758
Keywords Nursing; Psychosocial nursing; Multiple sclerosis; Biography; Sense of self; Carers; Liminality; Phenomenology; Qualitative research

Files







Downloadable Citations