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Improving recruitment to clinical trials with a register of a million patients who agree to the use of their clinical records for research in the Scottish Health Research Register (SHARE).

Sullivan, Frank M.; Treweek, Shaun; Grant, Aileen; Daly, Fergus; Nicolson, Donald; McKinstry, Brian; Hanley, Janet; Ure, Jenny; Sheikh, Aziz

Authors

Frank M. Sullivan

Shaun Treweek

Aileen Grant

Fergus Daly

Donald Nicolson

Brian McKinstry

Janet Hanley

Jenny Ure

Aziz Sheikh

Abstract

The UK's technical ability to identify people eligible for medical research is not yet matched by a practical capability to approach them directly to ask them to consider participation in those studies. The consequence is that recruitment to research is more difficult than necessary and some projects fail. This makes Britain a less attractive location to undertake clinical research than it should be. In order to overcome this increasingly important obstacle, we wanted to develop a register of Scottish residents who wish to be considered for participation in a range of studies. This was an oral presentation given at the Clinical Trials Methodology conference 2011, 4-5 October 2011, Bristol, UK.

Presentation Conference Type Lecture
Start Date Oct 4, 2011
Publication Date Dec 13, 2011
Journal Trials
Publisher Springer (part of Springer Nature)
Peer Reviewed Peer Reviewed
Volume 12
Issue Supplement 1
Article Number A115
Institution Citation SULLIVAN, F.M., TREWEEK, S., GRANT, A., DALY, F., NICOLSON, D., MCKINSTRY, B., HANLEY, J., URE, J. and SHEIKH, A. 2011. Improving recruitment to clinical trials with a register of a million patients who agree to the use of their clinical records for research in the Scottish Health Research Register (SHARE). Trials [online], 12(Supplement 1): oral and poster presentations from the 2011 Clinical trials methodology conference, 4-5 October 2011, Bristol, UK, Article A115. Available from: https://doi.org/10.1186/1745-6215-12-S1-A115S.
DOI https://doi.org/10.1186/1745-6215-12-S1-A115
Keywords Health research; Record linkage; Research governance; Governance framework; Therapeutic characteristic
Additional Information Grant, Aileen

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